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THE BLENDER
I told my friend Mark about what was happening with my friend Ron,
and he said simply: "When it's your time in the blender, it's your
time in the blender." For the last 18 months, Ron's been through
every setting - chopped, grated, pureed - until now
he's finally whipped. It began with a single-car accident on a twisting
country road, just before dawn on the 19th of August. Ron's wife,
Ellen, was ejected at 40 mph through the T-top of her Mustang,
landing on the left side of her head and crumpling like a rag doll.
She'd've died right there, except for the recently paroled woman
living in a broken-down trailer nearby, who was awakened by the
crash. She'd've died in the ambulance on the way to the nearest
hospital, if a medi-vac helicopter hadn't been available.
She'd have died that day if they hadn't flown her to the top trauma
unit in the area.
It was still touch-and-go for the next 72 hours (over 20 of them
spent in surgery). Her shattered cheek, fractured neck, punctured
lung, dislocated hip and broken back (in three places) would
all likely heal. But the TBI (traumatic brain injury), and the deep
coma resulting from it, were much more worrisome. The doctors
told Ron that there could be significant paralysis on her right
side, and that it appeared her speech center had taken a direct
hit, meaning she might not be able to talk. That is, if she regained
consciousness.
Coming out of a deep coma is nothing like the movies, where people
suddenly "wake up", a little confused, but essentially there. It's
much more gradual, much more subtle, as the different layers of
consciousness return in ripples, and then waves.
Somewhere in the fourth of fifth day Ellen's eyes finally opened,
fixed in an unseeing, unsettling stare. The first sign that
the coma might be lifting was a slight flutter in her left eyelid,
two days later. I don't know how Ron even saw it through all
the tubes and needles running in and out of her, and the wires dangling
off of her. He pinned his hopes and prayers on that flutter,
taking Ellen's hand and whispering in her ear: "We won't let this
beat us, baby."
Though her expression remained a frozen mask, Ron swore he
saw the flutter again. "We won't let this beat us, " he repeated.
It would become their mantra over the months that followed.
Ellen was back home with Ron in exactly 45 days, not the
consequence of a medical miracle, but because of a much more common
occurrence: they had no health insurance at the time of the accident.
After three weeks in ICU at Henry Mayo Newall Hospital, the doctors
who had saved Ellen's life told Ron they had some good news. They
had managed to get Rancho Los Amigos, L.A. County's nationally known
brain trauma center, to accept Ellen for admission and rehabilitation.
Rancho literally wrote the book on coma recovery scales and cognitive
levels. It sounded like the answer to Ron's prayers. Instead,
it became the entry into a numbing series of bureaucratic and institutional
nightmares.
Somewhere along the line (perhaps during the county's fiscal crisis
in the early 1990's), Rancho Los Amigos had stopped attracting the
top people. By the time of Ellen's admission, the administrators
and staff were dedicated only to coasting on the hospital's reputation.
They were not interested in trying to rehabilitate an indigent patient
whose prognosis was highly doubtful - a possible lose-lose on their
stat sheet.
After barely one week of evaluation, and in spite of her continuing
physical recovery, the doctor responsible for admitting Ellen informed
Ron that she had "plateau'd" mentally. He stated flatly that she
wouldn't get any better, and would require 24 hour care for
the rest of her life. He told Ron that the sooner he accepted that,
the better it would be for everyone. He recommended that Ellen be
committed to a county nursing home, and offered to facilitate the
transfer. Then he notified Ron that, in any event, her release date
had been set for 8 days later.
Ron couldn't believe the news. After getting over his initial despair,
he realized that the reason he couldn't believe the news was that
he didn't believe it. Everything his eyes saw told him differently.
The increments of progress were almost imperceptible, but he wasn't
imagining them. And hadn't she already fought off death? If
she wasn't ready to let go, then neither was he. He told the doctor:
"You want to release her? Fine. Then I'll take her home. Because
you're wrong." He told Ellen: "We won't let this beat us."
Eight days later at the time of her discharge, this same doctor
gave Ron no information, consultation, or referrals regarding proper
neurological follow-up for Ellen, and no instructions for her care.
He told Ron nothing about anti-seizure medications, somehow failing
to mention that seizures were a common after-effect of injuries
as severe as Ellen's. He, and the hospital, just dumped her.
Ron took Ellen home to their rambler in the high plains, 20 miles
outside of Lancaster. She was still at Rancho Level Three
on the coma scale, where the patient has virtually no memory and
very little concept of time and place. Imagine if at each moment
of the day every object of your surroundings was a total mystery
to you, with limited familiarity and recognition carrying over from
moment to moment -- a foggy combination of the perpetual now and
the perpetual unknown.
What happened next was out of a Frank Capra movie. In spite
of their depleted finances, Ron (who makes his living as a touring
comedian) canceled all his gigs to be with Ellen. He cooked
for her, carried her to the bathroom and shower, worked with her
on the basics of physical therapy that he'd picked up from the nurses
at Rancho. And Ellen responded. With Ron's help, she began to stand
for brief periods. Slowly, she regained some control of her right
foot, then the right leg and arm. Then they began to work on walking.
Two steps, then three, then the length of the hall. Along with the
physical therapy, he worked on getting Ellen's speech back.
They went over and over the days of the week, the names of their
dogs, how to count from one to twenty. Progress was painstakingly
slow, with the weeks turning to months. But as he showed her photographs
and repeated stories from their life together before the accident,
Ron
began to see flashes of Ellen's memory returning. Inch by inch,
the fog was lifting.
When her back had healed sufficiently, Ron began to take Ellen
for short drives through the countryside. Seeing the panorama
of mountains, plains and desert through fresh eyes was nothing short
of thrilling for her. Encouraged by the results of these outings,
Ron pushed the envelope, taking her across the mountains and down
to the ocean. She wept, overjoyed, at the beauty of the California
coast unfolding in front of her. One afternoon, maybe four months
after the accident, Ron asked
Ellen if she'd like to go out for lunch at their favorite Thai restaurant
in Lancaster. To his delight and surprise, her eyes lit up and she
answered him, clear as a bell, "Yes, I would." Another bridge crossed
and closer to the world. These were great moments and great days,
and they were starting to far outnumber the bad ones, when Ellen
was back in the fog. Meanwhile word of their circumstances spread
through the comedy community. A number of Ron's favorite clubs
put together soldout benefits,
featuring celebrity auctions with items donated by many of the country's
top comedians (including several signed scripts from Jerry Seinfeld).
Then the wife of one well-liked comedian heard the story. She circulated
a charity chain letter by email, with the help of several internet
comedy news groups. She described Ron and Ellen's situation, gave
out their address, and asked the recipient to send them a check
for $25 and forward the email to ten friends.
The response was astonishing. For the next two months, when Ron
went to pick up his mail he found as many or more checks than bills.
Nearly two hundred strangers responded, many with letters of prayer
and encouragement. Ron, choking back the tears, told me "Y'know,
I've always believed that people were basically good, and now I
know that I was right."
Six months after the accident, and only 4 1/2 after the doctor
at Rancho confidently told Ron to forget about his wife, she could
dress and feed and otherwise take care of all her basic needs. She
didn't just walk down the hall, either. She would stride forward,
in spite of her right leg's perceptible drag.
More importantly, her memories were finally beginning to coalesce.
She was clearly more cognitive and responsive, even taking care
of Ron for a week when he went down with the flu. And while complex
speech remained a problem, she was recovering more and more words
and phrases with each passing week. Ron and Ellen were halfway to
a miracle.
To celebrate, they took a drive to the coast, stopping for a quiet
lunch near Malibu. Ron took her hand and told her: "Baby,
if they'd told me that I could be sitting with you like this, six
months after your accident . . . I'd've given my right arm." Ellen
nodded, beaming, and gave a heartfelt "Yeah." Then she collapsed,
convulsing on the floor. Ron had found out the hard way about seizures
shortly after getting her home from Rancho. Since then they'd largely
been controlled by medication. But this time it was different.
He took her to the emergency room of their local county hospital.
She'd lost all use of her right side, including some facial paralysis.
She'd lost all speech. It looked like classic stroke symptoms, but
the doctor told Ron it was probably just another seizure. They took
some blood from Ellen, but never ran the tests for stroke. After
waiting several hours, the doctor decided there was no reason to
admit her, and told Ron to take her home.. In the middle of the
night, Ellen had more convulsions, almost choking on her own vomit
before Ron woke up. This time he drove her the 45 miles to Henry
Mayo Newall. The diagnosis: Ellen had indeed suffered one or more
strokes, probably the result of a blood clot left over from the
accident. The severity of the strokes was compounded greatly by
the hours of treatment that had been lost due to the emergency room's
failure to diagnose.
The impact was devastating. Ellen did manage to walk out of the
hospital almost a month later, only now it step by step, leaning
on her walker. She'd completely lost use of her right hand and arm,
and needed a brace from her knee to her ankle to keep the lower
right leg from collapsing. Speech was gone, and the fog had descended
again. They were back in the blender, big time.
Ron still told her :"We're not going to let this beat us", and
she still nodded "yes" as she squeezed his hand. But as they struggled
together day in and day out, it now seemed that every small step
forward was quickly erased by some setback: a fever or a seizure
that would more than wipe out the progress.
With financial pressures building again as the first anniversary
of Ellen's accident came and went, Ron knew he had to find
a way to get back to work. He figured that if he could just
get her strong enough to travel, even with the wheelchair, then
maybe he could do a week or two on the road every month, and take
Ellen with him. He took one last shot at being her physical
therapist.
At first, it seemed to be working. With the help of a new medication
that had all but eliminated seizures, Ellen became strong enough
to go for drives again. Ron took her with him to Las Vegas for a
week, performing his first shows since the accident. The trip went
so well that he booked another couple gigs for a month later, calculating
that by then Ellen would be up to the task.
But it wasn't to be. In spite of Ron's efforts, Ellen's
strength began slipping, ever so slightly, as the time for their
trip approached. With his options now running out, he hoped against
hope that getting out into the world might once again revive her.
But instead, the constantly changing stimuli proved too much for
Ellen. As the miles and days wore on, she grew progressively weaker
and less aware.
Returning home held no more magic, either. This time, Ellen really
had plateau'd. Ron no longer told her "we won't let this beat us",
because now he no longer believed it. He looked at Ellen, he looked
in the mirror, and he knew better. The cumulative effect of
two brain injuries and a similarly disabled health care system had
finally overwhelmed both her courage and his devotion.
Two days before Christmas, Ron's bankruptcy was approved by the
court. By the end of January, Ellen was re-hospitalized. Since
then she's been in and out of a deep coma, not even reaching Rancho
Level Three As I write this, she is being fed through a tube,
with a machine breathing for her. She recognizes no one and nothing.
Their best-case scenario for the future is that Ron with happen
to be with her when her time comes. I hope so. They've earned
that much. With any luck, it will be soon.
The larger truths here are both ironic and inspiring. Inspiring
that, at the moment of greatest need, doctors and technology advanced
enough to bring Ellen back from the brink were made available without
qualification. But ironic that once the triumph over death was achieved,
the same person deemed worthy enough to warrant such extraordinary
efforts was then cast into a bureaucratic labyrinth, put to the
tests of
indifference and incompetence, and (in Ellen's case) ultimately
sacrificed to the whims of a cost-benefit mentality.
Yet, even as the system was failing them, the caring response of
literally a thousand strangers carried them forward in their struggle.
The fact that the fight appears lost takes nothing from that affirmation.
I remember visiting Ron and Ellen after a truly magical benefit
organized by the entertainment director at the Riviera Hotel in
Las Vegas. After reading her a glowing review of the show,
I told Ellen how everyone had the same questions for me: How
was Ellen doing, and was she going be the same as before the accident?
The question was as ridiculous as it was innocent, but what caught
me off guard was that Ellen clearly thought so, too. Without
even a trace of bitterness, she responded with emphatic, eye-rolling
laughter, which Ron and I joined in on.
When we were done, I added that what had struck me most was everyone's
wish for her to be "the same" again, because as I'd watched the
faces of the people leaving the benefit it was clear to me that
many of them weren't going to be "the same". They went home that
night knowing something they'd long forgotten: that one person
caring does make a difference. That, I told Ellen, was her
gift to them.
Even the blender has its gifts. If you asked Ron, or could reach
beyond the fog to Ellen, I'm certain both would tell you that
their time in the blender encompassed many of the richest and most
real moments of their marriage. That may be the deepest irony, because
at the time of her accident., after 13 years together, Ron and Ellen
were within days of separating. The reasons are not important
now, but both were heartbroken about it. She enough to have
chosen death right then, and he enough to have just walked away.
Instead, in the face of what proved to be insurmountable odds,
they rediscovered the strength of their love for each other.
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